Blog posts by mommy Shana and mommy Jess

Three children, two moms, one C.P. diagnosis....and a partridge in a pear tree.

Tuesday, April 20, 2010

It takes a village.....it takes a state.....by mommy shana




If it takes a village to raise a child, it takes a state to raise a child with C.P. I mean this both physically and financially. I had no idea the amount of money it takes to properly care for Greta. Of course we have made many financial cuts in our lives, having twins alone put a strain on things, but we have been so very lucky to have been sent donations that go directly to Greta's care. This has really taken a lot of stress away from our family. We have insurance, and at least for the next 2 years we get help for her weekly P.T. sessions, monthly O.T. sessions, and speech therapy. Of course when she's 3 we lose all that help and she still probably won't be walking either......but I'm not going to stress about that now...really, it's one day at a time over here. Anyway, since the January diagnosis, with co-pays for 3 outpatient procedures, one hospital stay, several medications, several appointments to both C.P. specialists, neurologist, genetics (though this one really isn't necessary anymore), and her regular peds dr., it's really overwhelming. Not to mention we pay a pretty high monthly cost for this insurance in the first place. It costs more than I ever thought possible, and we haven't even got to the real expensive part yet! Obviously we can't afford this diagnosis and have relied on the help of other very generous people and can't express in words how much this means for our family. It means greta gets all the help we can give her. I don't have to skip O.T. sessions or P.T. sessions, or decline a medication for her, or not take her to a specialist we need to. I don't have to ignore the other children or choose which child gets to see the dr. this week, or if we can afford to take Gus in for his 103 fevers or Jack for his allergies. We are making it work, but it takes a village....it takes a state. I don't know many people who could afford this diagnosis, really. Not without some kind of community support. So thank you to all of those who have contributed to Greta's care. I00% goes to Greta.....100%. I used to feel ashamed of myself, because I couldn't give to Greta what she needed....but now, I feel no shame at all. I will do what I have to to make sure Greta can get all the help she needs. She's my daughter, and I made a promise to take care of her when I brought her into this world. For Greta, I will always do what it takes. Sure, I can't spend money on things I once enjoyed, but never will that be something I blame Greta for. I'm happy to give up movies, sitters, alone time with my partner, dinners out, all those things I once enjoyed. I'm happy to swap them for family pancake breakfasts, walks to the local park, playing in our sandbox, watching movies at home instead.........of course I would be lying if I said I didn't miss our old life. And I certainly can't say that the emotional part of this diagnosis hasn't hit our family like a sledge hammer, but I can say that in some ways it has brought us closer as a family. My perspective on what is most important has certainly changed, and probably in a good way.
Your diagnosis is still new to us and was a big shocking surprise, but I promise Greta, we will make it work for you...you deserve what all children with C.P. deserve, the care that is necessary and productive for your future. Already on Thursday you get your knew leg braces! Thanks again to all our supporters....without the individual contributions, and programs like First Steps, I don't know what we would do!

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